Tag Archives: peace

Tips to get through difficult times.

What a gift I have been given to be a leader, a voice and a survivor in the desmoid community.

My journey, my recovery, that I was chosen to be the founder and leader of Running for Answers is a gift that I am grateful to have.

My experience with my diagnosis and recovery has helped me to grow up and become a new, different woman by teaching me about healing my body, mind and spirit, and now, I feel, it is a calling to help others in the same way.

Recently, I had the gift of being able to share with a newly diagnosed desmoid patient who is struggling through her journey right now.

My words helped me, again, and I hope they help you.  While this is my advice on journeying through a health diagnosis, I know it has also helped me through other difficulties this year including being a caregiver to someone diagnosed with cancer, watching loved ones die and watching a dream I thought was my future shift and change and die in a certain way.   May you take what you can from this list and apply it to any difficulty you may be facing:

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An excerpt from my note to a beautiful desmoid survivor:
Here are a few things I can confirm:
This is confusing and scary and lonely.  Very lonely. 
It is frustrating and depressing and can make you very angry.
It is very difficult to see your body change and not to be as active as you once were.
It will get better.
You are going through this for a reason.
You will be active again.
Patience is the best approach you can have.  Hard, but true.
Lean on others for help.
Accept what is happening.  Be present.  It can be painful, but be present.  Don’t run.  Hear, Listen, Digest, then share.
Be kind to yourself and love your body through this.  It is doing a lot of healing work.  Pretty miraculous body.
Call me, call your friends, call your family – tell them how you feel.  Let it out.  It’s much better out then in.
Through it all remember again and again – you are not alone. Pray, believe, hope, accept.  You can get through this and you will.  Better, more alive and more grateful.
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In love and healing,
Sera