Tag Archives: healthcare

Why I write..

Why do I write here every week and share with you?  For me, this is a question I need to keep answering for myself.

As I stated in my last post, I am on a mission to find my voice, tell my truth and express it.  I will always be on a journey to do this and a part of why I write.  Another reason I write is to share my journey through a difficult medical diagnosis with my desmoid tumor.  I do this, 1. to create open space for others to relate, who share a similar difficult journey and 2. selfishly, to heal the frustration and anger that comes with this journey for me.

As important, and becoming even more clear to me is to share my not so typical approach to healing through integrated care that most people in America do not have the knowledge or means to engage in when they are healing.  I believe this was CRITICAL to getting to where I am today.

Watching the flurry of Healthcare headlines the last few days has made me realize, yes, the American Healthcare system failed me when I was diagnosis with my tumor, but not because of what the chatter is now.  Not because of my insurance, whether I had it or didn’t.  I actually had great insurance and access to the best medical facilities and still do.*

The industry failed me in my HEALING, in my return to health.  The system failed to see me as a whole person.  The system failed to help me get the right help for the suffering I was going through – and that help, which was paramount to overall health, was NOT covered by my insurance, problem 1, and not accepted or recommended by many of my doctors (until I fired them and got new ones), problem 2.  

The HEALING I am talking about is from the emotional stress that came from the diagnosis.  The HEALING I am talking about is the nutritional needs my body had from the start of this journey (and before).  The HEALING I am talking about is from the eating disorder I had – many of my doctors noticed it from early on, but none referred me to specialist or (Imagine this) a FREE 12 step program.  The HEALING I am talking about is the rebuilding of my body after surgery.  The healing I am talking about is of the symptoms under the “problem” that were never addressed by the traditional system.  The HEALING I am talking about is emotional and spiritual and physical, its holistic, and I am a whole person trying to heal.

I don’t know the answer of  how to fix this problem, but I have my experience and what works for me and my healing.  The more I can put into words what I experienced and the more I can hear “me too” from fellow survivors, the more I am starting to understand why I write.  

I write to heal.  

Originally, I wrote to heal myself and it has been a great tool and worked well.  However, as I progress, I am writing to help heal others and use my story to do that.  I see the need for this, again, as I walk with my Mother on her journey now.    

I’m still not sure what that means and how I will use my voice to continue to voice these concerns, but stick with me.

I’m on a mission….and if you know me, you know that will mean big things. 

I would love to hear your thoughts on this – please share.

In love and healing,


 *Note: I do not under estimate this problem in our healthcare system and will not attempt to tackle it, but what I will express is how the system failed me.


My Community of Healers

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I love connecting people and I love helping people heal.   I literally live my life finding and connecting patients and the health professionals they need every day.  Thanks to a few good conversations with friends, a networking event and getting more into the swing of tasks at my job this week, it occurred to me that it is time to share with you some of the information I love to gather – in hopes that it might just help you in healing too.

I have been so fortunate to have had so many wonderful professionals help me at different points of this journey of healing and I’m sure I’ll have many more in the future.  They certainly didn’t just help with the physical journey of healing post-Zelda, either.  I recognized after my first surgery that my need for healing was deeper than just physical.  The big task at hand was the spiritual and emotional progress that I wanted to make.

I recognized quickly that finding the right practitioners can be difficult and I believe strongly in an integrated approach to all healing.  Luckily, for me, due to my frustration at trying to find the right docs, my job now is to find integrated practitioners and bring them together to best serve patients.  Its crazy that I get paid to do this.  It is really a joy.  I feel fortunate to know a lot about the variety of integrative practitioners available and how to find a good one, so today I share with you those that I personally use and where to find good ones if you don’t live near me.

I hope its helpful!

In love and healing,



Acupuncture:  Kara S. (Be ready for a woman with a big heart, lots of love, intuition and an ability to know just what is going on with your body any time!) http://healingwithease.net

Guided Imagery:  Bob S.  (Healing your body, spirit and mind one image at a time.  What a magic this practice is!) http://www.theinwardeye.com

My church:  God is my ultimate Healer and this church leads me to Him again and again. http://theaterchurch.com

Coaching:  Handel Group started my journey.  Taught me how to tell the truth, dream big dreams and enjoy the entire journey.  http://www.handelgroup.com/coaching/hg-life-coaching

Health Coach: Ali S. will turn your relationship with food and your body on its head and make you wonder why you ever counted a calorie in your life.  https://alishapiro.com

Running Coach: John so eloquently taught me that listening to your body and surprisingly taking baby steps leads to results – big results.  http://www.fixyourrun.com

Good places to find practitioners in your area:

Functional Medicine

Integrative Medicine

I could go on and on and on.  If you need a specific integrated doc beyond these resources message me and I will be happy to help.